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新聞稿 2021年12月23日
總編輯／娛樂版編輯／副刊版編輯／健康版編輯
活動大使劉俊謙及單車運動員馬詠茹陪同香港血友病會主席及教授醫生主禮
全城支持 「關注血友病•全城為你加油」正式啟動
Online version: http://www.public.seedland.hk/press/HKHS/2112-We_Care_post/
Press release and Photos: Click Here (OneDrive)
Videos: Click Here
呼籲全城支持，邀請公眾於2021年12月23日至2022年4月17日世界血友病日期間，齊齊踩單車並登記時數及里數，累積紀錄為血友病患者打氣的「關注血友病•全城為你加油」於MOSTown新港城中心舉行啟動禮，由活動大使劉俊謙先生及單車亞運銀牌得主馬詠茹小姐，陪同香港血友病會主席林漢威先生、香港中文大學內科及藥物治療學系名譽臨床副教授王紹明醫生及香港大學李嘉誠醫學院兒童及青少年科學系陳志峰教授主禮。與此同時，大會於即日起至12月31日期間，取址MOSTown新港城中心L2 Atrium C設置虛擬單車體驗，歡迎公眾免費參加，累積的時數及里數將納入為「關注血友病•全城為你加油」的紀錄，為饒富意義的慈善活動打響頭炮。
是日啟動禮的活動場地佈置以香港血友病會會徽的紅白二色為設計靈感，別具心思。嘉賓興奮到場，現場洋溢一片活力氣氛。啟動禮首先由司儀邀請林漢威主席、王紹明醫生及陳志峰教授上台分別介紹血友病患者的抗病經歷、治療方法，以及照顧兒童患者的須知揭開序幕，並由林漢威主席講解「關注血友病•全城為你加油」的概念及玩法。隨後，大會隆重首播由活動大使劉俊謙及前女子自由車香港代表隊成員、單車亞運銀牌得主馬詠茹小姐，夥拍新生代演員湯君慈、湯君耀、周漢寧及冼康正，並由林漢威主席及兩位千金粉墨登場參與拍攝的活動宣傳片，以充滿創意及正能量的表達手法，呼籲公眾參與為期四個月的「關注血友病•全城為你加油」。為了身體力行表示支持，劉俊謙及馬詠茹更親臨啟動禮現場，在大家的見證下即場踩虛擬單車，啟動「關注血友病•全城為你加油」的計時計里模式，為活動創下首則紀錄。啟動禮在主禮嘉賓及到場支持的血友病病友大合照之後圓滿結束，同時標誌着為期四個月的「關注血友病•全城為你加油」正式開始。
香港血友病會主席林漢威先生表示：「血友病是先天性遺傳病，患者體內欠缺凝血因子，受傷出血時不能有效止血，會出現流血不止的情況，嚴重的更有機會致命。血友病分為A型及B型，其中B型血友病以首位病人Stephen Christmas的名字命名，又稱為『聖誕病』（Christmas Disease）。藉着聖誕節舉辦活動呼籲公眾關注血友病，是別具深意。由於血友病患者容易出現流血不止的情況，亦容易在關節位置積血，長遠令關節永久受損，所以有一些運動自小未能參與，例如踩單車。但隨着科技進步，現在已經有預防性的治療方法，只要事事小心，照顧得宜，血友病患者亦可以跟平常人一樣，享受生活。是次舉辦『關注血友病•全城為你加油』這個活動，就是為了推廣這個訊息。」
香港中文大學內科及藥物治療學系名譽臨床副教授王紹明醫生表示：「血友病是通過X染色體遺傳的疾病，因此主要影響男性，女性通常為基因攜帶者，只有部分人會出現病徵。我希望市民大眾能夠理解和接受血友病，更加重要的是明白血友病並非傳染病，跟病人同枱用膳或一起生活並不會因此而受到感染。我樂見近期在治療方面有突破性進展，例如最近在香港獲准使用的長效凝血因子，大大減低了病人每星期的注射次數及時間，有效改善患者的治療及生活質素。如果將來基因治療成功，更可以進一步改善患者的生活。」
香港大學李嘉誠醫學院兒童及青少年科學系陳志峰教授表示：「血友病患者在嬰兒時期病徵往往並不顯著，一般在幼童期開始學行時，由於較容易跌倒，才會出現瘀斑。如果發現小朋友肌肉或關節時常出血，就要馬上看醫生，醫生會給予病人凝血因子控制病情。血友病患者是否不應該上體育課？陳教授表示雖然過往也有病人被勸阻進行某一些比較容易引致受傷的運動，但現在已有預防性治療方法，只要小心護理，醫生會盡量鼓勵患者過正常生活。」
近日日以繼夜參與電影拍攝工作的活動大使劉俊謙先生表示：「雖然工作忙碌，但我相信人生必須爭取平衡，有機會參與這個別具意義的活動，絕對是義不容辭。在此呼籲大家由即日起至2022年4月17日世界血友病日期間，不論是在戶外踩單車，還是在室內踩健身單車甚至虛擬單車，都可登入hkhscampaign.com登記時數及里數，累積紀錄成為『關注血友病•全城為你加油』的成績，為血友病病人打氣。」
現已退役回歸校園、於香港中文大學修讀酒店管理並獲著名大學美國Cornell University收錄作交換生的單車亞運銀牌得主馬詠茹小姐表示：「雖然已經退役，但踩單車始終是我的興趣，不需要訓練的日子，抽空踩單車更感鬆弛。希望大家也可以跟我一樣，在享受踩單車的同時，為慈善出力。」
關於「關注血友病•全城為你加油」
香港血友病會邀請公眾於2021年12月23日至2022年4月17日世界血友病日期間，不論是在戶外踩單車，還是在室內踩健身單車甚至虛擬單車，都可登入hkhscampaign.com登記時數及里數，累積紀錄成為「關注血友病•全城為你加油」的成績，集全城之力，為血友病病人打氣。
關於虛擬單車體驗
2021年12月23至31日期間，香港血友病會於MOSTown新港城中心設置虛擬單車體驗，歡迎公眾免費參加，累積的時數及里數將納入為「關注血友病•全城為你加油」的紀錄。活動時間：12月23日下午4:00至6:00；12月24至31日上午11:00至下午7時。
關於香港血友病會
香港血友病會在威爾斯親王醫院兒科醫生成明光醫生及瑪嘉烈醫院兒科醫生凌紹祥醫生的倡導下於2006年成立，旨在支援及扶持血友病病友及其家屬、教導病友自我照顧或指導家屬如何照顧病友，與此同時，教育大眾認識及了解血友病，以及為病友爭取更佳治療，令血友病患者可以健康、快樂、獨立及自主地生活。
場地贊助
查詢詳情或索取照片，歡迎致電+852 9534 0813或電郵至 helena@seedland.hk 與Ms Helena Hui或致電 +852 6010 7062或電郵至 kogi@seedland.hk 與Ms Kogi Ko聯絡。
發稿：香港血友病會
代行：Seedland International Limited
電話：+852 3583 3100 傳真：+852 3583 1331
網站：www.seedland.hk 電郵：info@seedland.hk
Press Release 23rd December 2021
Event ambassador Terrance Lau and cycling athlete Vivian Ma join hands with the Chairman of the Hong Kong Haemophilia Society and medical experts to kick off the “We Care • Fight Haemophilia” campaign, calling for public support
Online version: http://www.public.seedland.hk/press/HKHS/2112-We_Care_post/
Press release and Photos: Click Here (OneDrive)
Videos: Click Here
Event ambassador Terrance Lau and cycling athlete Vivian Ma joined hands with Mr. Henry Lam, Chairman of the Hong Kong Haemophilia Society, Dr. Raymond S.M. Wong, Clinical Associate Professor (Honorary), Department of Medicine & Therapeutics, The Chinese University of Hong Kong, and Professor Godfrey Chan, Department of Paediatrics & Adolescent Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, to officially launch the “We Care • Fight Haemophilia” campaign at MOSTown, inviting the public to register the time and mileage achieved by cycling between 23rd December 2021 to 17th April 2022 (World Haemophilia Day). The accumulated results will reflect the support rendered by the city to patients suffering from haemophilia. A virtual cycling experience is available at L2 Atrium C of MOSTown from 23rd to 31st December, in which the time and mileage achieved will be included in the record of “We Care • Fight Haemophilia”, marking a sensational kick-off of the four-month campaign.
Taking inspiration from the logo of the Hong Kong Haemophilia Society, the venue of the kick-off ceremony was decorated in the colour theme of red and white, delivering energy and vibrance. The ceremony was commenced with sharings by Mr. Henry Lam, who candidly talked about his struggle against haemophilia, Dr. Raymond S.M. Wong, who spoke about the treatments of haemophilia, and Professor Godfrey Chan, who shared his insights on taking care of children with haemophilia, followed by an introduction of the “We Care • Fight Haemophilia” campaign by Mr. Henry Lam. The attending guests were then invited to witness the debut screening of the campaign video starring event ambassador Terrance Lau, former member of the Hong Kong Cycling Team and Asian Games silver medalist Vivian Ma, up-and-coming actors Bruce Tong, Chris Tong, Henick Chou and Christopher Sin, Chairman Henry Lam and his two daughters, calling upon the public to participate in the “We Care • Fight Haemophilia” campaign. Terrance and Vivian gave the campaign a head start by achieving the first piece of time and mileage record via the virtual cycling experience. The ceremony was brought to a joyous completion with a group photo of all the officiating guests and the members of the Hong Kong Haemophilia Society who were present to support the event.
Mr. Henry Lam, Chairman of the Hong Kong Haemophilia Society, says, “Haemophilia is an inherited genetic disorder. Lacking the clotting factor in their blood, haemophiliacs’ body would not be able to stop bleeding if hurt, and it is possible for life-threatening complications to develop in severe cases. There are two main types of haemophilia: haemophilia A and haemophilia B. The latter is also known by the eponym Christmas Disease, named after Stephen Christmas, the first patient diagnosed with haemophilia B. Christmas, therefore, has a special meaning to us and we find it a good opportunity to invite the public to learn more about haemophilia during the festive season. We find it meaningful to take Christmas as an opportunity to raise the public awareness of haemophilia. As haemophiliacs are prone to developing spontaneous haemorrhage in joints that may lead to permanent joint damage, many of us have been prohibited from doing certain sports, cycling for instance, since young. However, with the advancement of technology and the availability of preventive measures and appropriate treatment nowadays, haemophiliacs can live an active and vibrant lifestyle, and enjoy life to the fullest. This is the message we want to promote via the ‘We Care • Fight Haemophilia’ campaign.”
Dr. Raymond S.M. Wong, Clinical Associate Professor (Honorary), Department of Medicine & Therapeutics, The Chinese University of Hong Kong, remarks, “Typically inherited from one’s parent through an X chromosome, haemophilia mostly affects male while female would be a gene carrier, with only a few of them having symptoms. I wish that the public would understand and accept haemophilia, for instance, the disease is not contagious, no one will be infected by sharing a meal or living together with a patient. As technology advances, the influence of the disease to the patient is getting less and less significant. I am delighted to see breakthroughs in haemophilia treatment including the availability of long-acting factors in Hong Kong, which reduces the frequency and time of injections, hence improve the patients’ quality of life. If gene therapy were to be successful in the future, the patients could further envision a brighter prospect.”
Professor Godfrey Chan of the Department of Paediatrics & Adolescent Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, says, “The symptoms of babies with haemophilia are rarely identified until toddler age, when they are prone to falling and forming bruises. Parents should immediately consult a doctor if they detect abnormal bleeding in their children, be it in the muscles or in the joints. Doctors will prescribe medications with coagulation factors to keep the conditions under control. With preventive treatments available nowadays, children suffering from haemophilia can take part in PE lessons and live a normal life.”
Terrance Lau, who has been busy shooting his new movie, is delighted to support this meaningful event, and says, “I believe in achieving balance in life – despite my busy work schedule, I am happy to have a chance to participate in this meaningful campaign. Please join me in registering the time and mileage achieved by cycling, be it cycling outdoor, in a gym, or riding a virtual bike, by submitting the records via hkhscampaign.com between 23rd December 2021 to 17th April 2022 (World Haemophilia Day) to the patients on in their fights against haemophilia.”
Retired from being a professional athlete, now a student at the Chinese University of Hong Kong and getting ready for a study exchange at the hotel management school of the renowned Cornell University in the United States, Vivian still enjoys cycling as a hobby, and says, “I am done with my training days but cycling is still dear to my heart. I hope you will all find your share of fun in cycling while at the same time, support the charitable cause of ‘We Care • Fight Haemophilia’ campaign.”
About “We Care • Fight Haemophilia
Hong Kong Haemophilia Society cordially invites the public to click into hkhscampaign.com to register the time and mileage achieved by cycling between 23rd December 2021 to 17th April 2022 (World Haemophilia Day). The accumulated results will reflect the support rendered by the city to patients suffering from haemophilia.
About Virtual Cycling Experience
A virtual cycling experience is available at L2 Atrium C of MOSTown from 23rd to 31st December, welcoming the public to join for free. The time and mileage achieved will be included in the record of “We Care • Fight Haemophilia”. Daily hours: 23rd December 4:00pm to 6:00pm; 24th to 31st December 11:00am to 7:00pm.
About Hong Kong Haemophilia Society
Initiated by paediatricians Dr. Shing Ming Kong of Prince of Wales Hospital and Dr. Ling Siu Cheung of Princess Margaret Hospital, Hong Kong Haemophilia Society was established in 2006. The Society aims to provide support and assistance to haemophiliacs and their family. By educating its members to take care of themselves or their family to attend to the patients’ needs, as well as cultivating the public to get to know and understand haemophilia, the Society fights for better treatment for its members, helping its members live a more healthy, happy, independent and autonomous life.
Venue Sponsor
Released by Seedland International Limited
On behalf of Hong Kong Haemophilia Society
Media enquiries:
Tel: +852 3583 3100 Fax: +852 3583 1331
Website: www.seedland.hk E-mail: info@seedland.hk
Contacts:
Ms Helena Hui (+852 9534 0813 / helena@seedland.hk )
Ms Kogi Ko (+852 6010 7062 / kogi@seedland.hk )